So this entry is to thank and spread awareness for the amazing Mason’s Voice foundation run by Baylee and Louis Joseph. Baylee received fetal surgery at CHOP just like me! She is a fellow Florida mom, and reached out to me when I got my diagnosis and was in the process of setting up things with CHOP. We spent weeks communicating and texting and she was an incredible blessing, as I was feeling so lost and caught up in a whirlwind. She explained to me about her inspiring story, and her incredible daughter Mason. Mason is not only completely beautiful, but as also so far exceeded all of her doctor’s expectations! She is doing amazing! She leads a happy and fulfilled life, full of love from her amazing brother, parents and support system.
After speaking to Baylee and Louis for a few months, we were the very first recipient of the Mason’s Voice donation for fetal surgery families. I cannot express how completely grateful and happy we were for this truly amazing gift. I was overwhelmed with emotion.
Please check out the video of the same below, when I learned the news! I have also linked the foundations Facebook page. Please donate if you can, they do such amazing things for Spina Bifida babies and families and are a true blessing of a family. I am eternally grateful to them, as is my son.