Updates!

Hello Everyone! Long time no see, as far as a traditional blog entry goes. Everything has been so strange and I have been mostly posting on our FaceBook page (Which please go “like,” if you have not already) . We had a small surgery this week, which we had been waiting on since before all of the COVID restrictions. Baby Corbin’s heels had tighened back up after his initial heel cord release back in September, so we had a follow up this past Tuesday, and was successful! We are hopeful this one will stick, and once we go in for our follow up we will get the little guys first set of AFOs!

We are so excited that we were approved via insurance and will be receiving the baby’s first mobility aid! These AFOS (which are braces that will help us with weight bearing) A lot of children with Spina Bifida require a little more help with ankle or calf support, and this bracing will be our first step to walking! We are unsure how much assistance Corbin will need in the future with his mobility but we are so excited to start this journey towards his independence. We have been seeing PT once a week, and once some more COVID measures are lifted we will be going twice a week! We have seen so much improvement in his strength and abilities since we began Physical Therapy, and are overjoyed with the care we have received so far.

At almost 11 months old, we now have four teeth, and say two words (None of which are Mama!) We say “baby” and “Dada” for now. Our sitting has improved drastically, but we are still working on crawling. We have tried a lot of new foods, but our favorite so far has been pizza crust of all things! Don’t you worry readers, Mommy feeds us lots of fruits and vegetables. We love swimming in the pool, and have become quite the water baby! We are all getting a little stir crazy in the house together, and cannot wait until we can branch out a little bit and perhaps do the socially distanced nature trails nearby.

Overall just wanted to give everyone an update! Our family is staying safe and health at home. We have some follow up imaging to do once we hit the 12 month mark, and clinic reopens. Baby is doing great, we just wish we could enjoy more of the summer outside of the house!

Stay Safe Everyone!

Love,

Laura

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Watching cartoons at the hospital. We were so brave!

One year removed

The best way to predict the future is to create it

Abraham Lincoln

One year ago Corbin and I had our open fetal surgery to repair the hole in his spine. One entire year ago we went through several hours of major surgery together, and around this time I was already out of the OR, and sleeping in a recovery room. Our amazing doctors communicated to my husband Jesse that the procedure went well, and there were no complications. Honestly I cannot believe our journey in Philadelphia was a year ago, to me it seems like we just got home last week. I have such vivid memories of my fears of surgery, our many OB appointments, ultrasounds, lots of tears, but also lots of hope.

In the Spina Bifida community, the anniversary of one’s fetal surgery date is known as a child’s “Butt-day,” the day their tiny spines and butts were exposed to the world and repaired by the surgeons. We also refer to it as Corbin’s, “Sneak peek,” and “Miracle,” day. Originally I was planning on a family bbq, and pool day with his grandparents, but of course due to COVID restrictions we are abiding by social distancing, so that had to change. So we made cupcakes, and Corbin got to try cake for the FIRST time, (It was a HIT!) we took some funny pictures after play and bath time, to show off our scar, and show how strong we are. Mommy, Daddy and baby have had lots of cuddle time, and sang silly songs. My husband is thoughtfully making me a special dinner tonight, because in his words “You went through something hard too, not just the baby,” and he is re creating my post surgery meal from 2019. (Ravioli, garlic bread, and lemon bars for anyone curious) We will spend the evening as a family, and reflecting on the last year.

I wish I could speak to past me, and tell her that everything would be okay, that it would be a long and difficult road, but that, the little baby in her tummy would defy all odds, and amazing his doctors and therapists every day. That he would be unconditionally loved by his family, adored by his parents and grandparents. That he would have a funny laugh, and a cute smile, and already an amazing sense of humor. I wish I could hold her hand when she cried and erase all the fears and doubts. There will be setbacks, and bad days, but that he is the most amazing odds defying warrior, and the best thing to ever happen to her family. He is perfect.

Thank you to everyone who takes the time to read this blog. Thank you to my incredible husband, who is the most amazing father to Corbin. Thank you to my family and friends who have supported all of us throughout the last year and a half of our journey. Thank you to everyone who cheers on Corbin from near and far, we love and appreciate you! Pics from our Butt/Sneak Peek day below!

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